Fundraiser for Research of Rare Disease - WTOC-TV: Savannah, Beaufort, SC, News, Weather & Sports

07/11/05

Fundraiser for Research of Rare Disease

A Savannah restaurant is pitching in to help a local girl raise money to find a cure for her rare, genetic disease. It's a tall order for Loco's Deli and Pub, raising money for Lindsay Ashman and thousands of other people who have Friedreich's ataxia, or FA.

"There's no cure, there's no treatment and that's why we are here," said Lindsay.

The disease affects one in 50,000 people in the United States, leaving young people like Lindsay in walkers and wheelchairs way before their time.

But Loco's and their customers are hoping they can help change that. "I think it's a great community partner thing," said owner Ben Everette. "Because not many people know what the disease is and this is going to help out just by reading the table tips and people getting involved in the disease and help people like Lindsay out."

For every customer who ordered one of their top items on the menu, Loco's donated one dollar to the Friedreich's Ataxia Research Alliance.

"It's a 100-percent tax-deductible organization," said organizer Allyson Campbell. "It's funded primarily by volunteers and events like this so they can do more research."

Loco's also raffled off several prizes and held a silent auction.

"It makes me feel proud, it makes me feel hopeful and it makes me feel lucky," said Lindsay.

And she knows she's not alone in her battle against this life-threatening disease.

The event raised more than $5,000.

Reported by: Michelle Paynter, mpaynter@wtoc.com

Powered by Frankly