SAVANNAH, GA (WTOC) - Lymphatic malformations, a rare condition that doctors don't even know much about, are clusters of cysts that fill with fluid often resulting in intense swelling.
On Wednesday, Liam's Land donated two $20,000 grants to research the condition at the Arkansas Children's Hospital. Liam's Land is a Savannah based non-profit organization created by Janet Steffen, whose son, Liam, was born with lymphatic malformations 2 years ago. When he was born, she and her husband, Joe, learned that doctors still do not know a lot about the condition. They wanted to do something to help other parents.
"Right now, there is not a quote, unquote best practice. A lot of these surgeons see lymphatic malformation maybe a couple of times in their career and these kids really have poor outcomes. So, by funding prestigious Children's Hospital and giving a website to lymphatic malformation families, showing them where a lot of these doctors are throughout the United States and the world so they can get to the hospital that is best for them," said Janet Steffen, Liam's Land organization.
Wednesday's event was held at the Savannah Golf Club. Dr. William Rolston, a local ear, nose and throat doctor who trained at the Arkansas Children's Hospital, accepted the check.